What supportive care measures should be considered for patients with glioblastoma multiforme to manage symptoms and improve quality of life?

Provide a named healthcare professional responsible for coordinating support, such as a key worker, to manage health and social care needs for patients with glioblastoma multiforme. This includes addressing complex needs such as psychological, cognitive, physical, spiritual, and emotional support ¹.

Offer information to patients and their relatives and carers in a realistic, empathetic manner, using suitable formats, throughout their care pathway. This helps in understanding the disease, treatment, and support options ¹.

Discuss health and social care support needs, including psychological, cognitive, and emotional support, with patients and their carers, and set aside enough time for these discussions. This ensures comprehensive support tailored to individual needs ¹.

Address additional complex needs during or at the end of treatment and throughout follow-up, such as changes in cognitive functioning, fatigue, loss of personal identity, loss of independence, and the impact on personal and sexual relationships. This helps improve quality of life and manage symptoms ¹.

Consider neurological rehabilitation assessments at diagnosis and during follow-up, and provide information on accessing neurological rehabilitation options in the community, outpatient, or inpatient settings. This supports physical, cognitive, and emotional recovery and adaptation ¹.