How should I manage the skin care of a patient with oculocutaneous albinism to prevent sun damage?

Management of skin care in a patient with oculocutaneous albinism to prevent sun damage involves:

• Strict sun protection measures: Advise the patient to avoid excessive sun exposure, especially during peak UV radiation hours, as their skin lacks melanin and is highly susceptible to damage and skin cancer ¹.
• Use of protective clothing: Recommend wearing close-weave, covering clothing, wide-brimmed hats, and UV-protective sunglasses to shield skin and eyes from ultraviolet radiation ¹.
• Regular application of broad-spectrum sunscreen: Use a high SPF sunscreen on all exposed skin areas, reapplying frequently, especially after sweating or swimming ¹.
• Seeking shade: Encourage staying in shaded areas whenever possible to reduce direct UV exposure ².
• Education and awareness: Provide culturally appropriate, consistent information about the risks of sun exposure and the importance of protection tailored to their skin type and condition ¹.
• Monitoring for skin changes: Regular skin checks for early signs of sun damage or skin cancer, with prompt referral if suspicious lesions develop ¹.
• Vitamin D considerations: Since sun avoidance may reduce vitamin D synthesis, discuss vitamin D supplementation as appropriate to maintain bone health without increasing sun exposure risk ¹,².