How can I effectively communicate the diagnosis of Functional Neurological Disorder to patients and their families?

Effectively communicating the diagnosis of Functional Neurological Disorder (FND) to patients and their families involves clear, empathetic, and supportive dialogue.

• Ensure that patients and families are involved in discussions and supported to make informed decisions about care, respecting their right to understand the diagnosis and management options.

• Use clear, non-technical language to explain that FND is a recognized neurological condition, often presenting with symptoms such as word-finding difficulties, memory problems, or concentration difficulties, which are common and do not necessarily indicate progressive neurological disease.

• Reassure patients that symptoms like memory and concentration difficulties may be part of the disorder and do not always require further neurological referral unless new neurological signs develop.

• Provide both oral and written information tailored to the individual’s needs, and offer consistent communication from healthcare professionals involved in their care.

• Offer ongoing support and information throughout the diagnostic process, especially during periods of uncertainty or delay, and advise on available resources and support for both patients and their families.

• Encourage questions and address concerns openly to promote understanding and reduce anxiety related to the diagnosis.

This approach aligns with NICE recommendations on communication and support for neurological conditions, emphasizing patient involvement, clear information, and ongoing support ³.