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What resources or support services are available for patients and families dealing with bereavement in my practice area?
Answer
Patients and their families dealing with bereavement in your practice area can access a range of resources and support services tailored to their needs. Bereavement support should be offered by professionals with appropriate expertise both before and after the death, including opportunities to talk with healthcare professionals involved in the patient's care to discuss memories, answer questions, and provide emotional support. Home visits and bereavement support groups are also valuable options to consider.
For families of children and young people with life-limiting conditions, it is important to offer bereavement support not only to parents or carers but also to siblings, recognizing their unique needs. Written information about bereavement support and psychological support groups should be provided, and the multidisciplinary team should be informed of the support plan.
Local NHS resources include a searchable database of bereavement support services, and charities such as Together for Short Lives offer booklets and guidance to assist families during early bereavement.
For adults and their families, multidisciplinary teams should ensure access to spiritual care and be aware of local community resources. Family members and carers should have their needs assessed separately and be offered information about local sources of advice, support groups, volunteer visitors, respite care, and psychological support services. Psychological support is important for managing anxiety and depression related to bereavement.
Carers should be offered frequent opportunities to discuss their concerns and receive emotional and practical support, including during transitions such as the death of the person they care for. Continuity of care with familiar professionals and early contact with carers involved in end-of-life care can improve bereavement outcomes.
Key References
- CKS - End of life care in children
- CKS - Palliative care - general issues
- NG61 - End of life care for infants, children and young people with life-limiting conditions: planning and management
- NG42 - Motor neurone disease: assessment and management
- NG234 - Spinal metastases and metastatic spinal cord compression
- NG150 - Supporting adult carers
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